Prader Willi Syndrome Treatment
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A group of clinicians has established a series of guidelines for the treatment of people with prader willi syndrome pws.
Prader willi syndrome treatment. While there is unfortunately no cure for this condition the increasing availability of new treatment options makes it easier for parents and patients to find a way to manage prader willi syndrome and its wide array of symptoms. A team of health professionals will likely work with you to manage the condition. Those affected national institutes of health 2016. Treatments prader willi syndrome pws is a rare complicated condition that affects many parts of your body.
The treatment of pws is currently based on treating the symptoms of the disorder as they arise. Because prader willi syndrome is a spectrum disorder treatment plans will vary. Are any treatments available for prader willi syndrome. Children s hospital at vanderbilt.
A working list of therapies in development for pws can be found here. Behavioral problems are common including temper tantrums stubbornness and compulsive behavior many affected individuals also have sleep abnormalities. Early diagnosis and treatment can improve the quality of life for people with prader willi syndrome. Prader willi syndrome is treated with behavior management and supportive therapies.
Our work to accelerate pws research offers hope for the development of more effective treatments and an eventual cure. Symptoms include weak muscle tone and poor feeding ability. Prader willi syndrome is a rare genetic condition that affects a child s metabolism and causes changes in the child s appearance and behavior. Your team may include a doctor who treats hormonal disorders endocrinologist behavior specialists a dietitian physical and occupational therapists a mental health professional a geneticist and other.
The new guidelines were described in the study a multidisciplinary approach to the clinical management of prader willi syndrome. The guidelines are already being implemented at tennessee s prader willi clinic at monroe carell jr. It stems from a problem with one of your chromosomes a strand of dna that carries. Additional features of this condition include distinctive facial features short stature and small hands and feet.
Treatment for skin picking frequent skin picking can lead to scarring and skin infections such as cellulitis an infection of the underlying tissue.
About Prader Willi Syndrome
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